2019 UPdates on Bryan Perrin - #1 on Mayo's heart transplant list

Continual updates daily, weekly, bi-weekly or monthly 

(as is the need) 

while Bryan faithfully waits on the LORD for a heart! 

January 15, 2019

#1 on Mayo's Heart Transplant List...waiting...waiting...waiting... waiting on the LORD...

These two pictures show our 2019 Theme for the Rochester church of Christ.  

As we consider these words in relationship to Bryan Perrin and his family, we want to continue to reach out to them in FAITHFUL LOVE, as we sow MERCY, GRACE, KINDNESS, AND FAITH!

This is such a hard road!  A rare disorder!  A rare blood type!  Only one place, in the world, that will do this transplant!  How much longer must Bryan wait?  Another year?  Two years?  Three years?  Only our LORD knows!  

Are they in need of encouragement?  Yes!  

Additional funds?  Yes!

Prayer?  Yes!

As Bryan grows weaker, join us in praying daily, in faith, that GOD will provide a way soon for Bryan to receive a new heart.  His next appointments at Mayo Clinic will be the week of 1/21.  We'll update after we know more.  Thank you!

The Rochester church of Christ is asking you and your church family and friends to pray for the Perrins and help them financially. If you need your check to be tax deductible, please write it to the Rochester church of Christ with a note indicating that your gift is for the Perrins.  Otherwise, write your check to the “Perrin Family Benefit Fund”.  

Mail gifts to:
Rochester church of Christ 

Perrin Family Benefit
632 2nd Street, SW
Rochester, MN. 55902

You may address questions to this email:  rochesterchurchofchristmn@gmail.com

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Saturday, February 9, 2019

This is Bryan Perrin and I would like to pass on an update on my status...

First and foremost, we would like to thank God for allowing me and my family the ability to handle this situation with the utmost understanding and patience that we can have. But, we could not have gone through any of this without the help from family, friends, and all the loving and caring souls who read these articles. 

I had my re-evaluation and checkup for my heart transplant in January. The great news is that I am still stable enough to be in Kentucky and be airlifted to the Mayo Clinic in Minnesota when the call comes. Also, all my other organs are completely healthy.  They did notice that my heart has grown more. Now my heart is about 6 times larger than a normal heart and is touching my left rib cage. I only have maybe 10% of my left lung usage due to the size of my heart, but one of the things that surprises the doctors is that I have 100% oxygenation in my blood. Another blessing from the Lord above. 

I have found out that my transplant is not going to be a typical cut and replace the heart. Apparently, I have a unique situation. I was born with Transposition of the Great Arteries. That isn't what makes my heart unique, but what does is that I am wired differently through the nervous system and differently the way the blood flows, even differently than a normal person or even someone else with Transposition of the Great Arteries. This goes to show that no matter how much we try to understand things, man will never come across every scenario. 

We are taking events day by day. This has really affected my family in many ways. I am not always feeling the best, so we have to base our trips out to the store or events on how I am at that moment. Which means it is very difficult to make plans to commit to someone if I don't know that day how I am and if I will be able to do more than sit on a couch. 

I want to give a description about someone that should be given the highest honor. It would go to the most wonderful, beautiful, and before we were married I considered her the most virtuous woman I have ever known - my wife Angela. This woman is the strongest woman I have ever known! Before I became sick she was running a professional portrait studio, taking care of our home, and raising our two children. Then when I had to stop working because of my heart and then my heart started to stop on me multiple times. The doctors said I had to be watched 24/7. With me not being able to work I was able to get disability, but we would need more to have some one watch me. So, my wife stopped working to be able to care for me and our kids, 24/7. She has been doing this for going on 7 years now. She truly is the strongest woman alive, and I could not have asked for a more faithful one either. When I am at my lowest moments here she is with the weight of the world on her shoulders coming over to me to say it will be ok, She knows that God has everything in hand and she reminds us that we must have faith.... I have learned that with faith in God and placing a humble open heart to family, friends, life can be lived with the attitude that there is LIGHT at the end of the tunnel and tomorrow may not be so bad.

Believing that JESUS is LIGHT and LIFE!!!

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Below, you can click on "Older Posts" to find updates from 5/18 - 12/18.